Ravings for Remedies

Yesterday morning was a perfect example of the complications of Klinefelters. One of the things that occur is an inability to dedicate concentration to one element. the day itself was planned out to be hectic. From Frankston, we had to travel into the city to obtain another Reandron 1000 script and implant of testosterone, so that i can function normally once more.

This may seem like a mundane task, but to me when testosterone deficient, it’s the equivalent of sitting an exam. Simple things like bridging words in conversation seem to throw me when I am testosterone deficient. for example, a porter of a parking complex asked ‘are you patient’ (he was asian), I thought, ‘what a weird question, yes I’m a patient person.’ Then later realised what he really meant. that doesn’t make me unintelligent, it just affects the way we retrieve information.

Upon receiving the script i sent my girlfriend down to the pharmacy, while I had to take a blood test to check for prostate cancer, my endocrinologist recommended it. having been up so early, we hadn’t had any breakfast and the lack of any fluids made my blood dehydrated, so when the nurse was extracting the blood, she had to apply more pressure to remove all the correct dose (as a consequence now, my arm aches!). I felt dizzy, experienced symptoms of shock and fainted, seconds later I was crying – it felt uncontrollable. it that happens a fair bit, the “rollercoaster” (as i call it) of emotions.

The implant was not painful at all, my doctor is extremely experienced, after having seen her now for around ten years. I told my doctor that i had been internalising a lot of the perceived emotions and intentions coming from my boss and workmates, though they may have been spoken or acted in good humour, my deluded reason at so late past testosterone deficiency (until yesterday, three weeks) made me think they were singling me out / putting me down. This of course was not the case, but we (KFS) cannot see it that way, our hormones dictate how we behave and compare us closely to what my doctor defines as ‘male menopause’. She also told me that of her other thirty KFS patients, all had lost their jobs just before receiving their next implant / injection. This was most likely due to their bosses / workmates not understanding their condition. I’ve always believed that honesty is the best policy and so, whether it is detrimental to my future within the company or not, always inform my employer of KFS. It is why it is imperative to receive the drug and continue its course, as any break can be intellectually, socially and financially disruptive.

Gone untreated and even unacknowledged (thinking ‘i don’t need it’ or ‘i function fine’) is only living to a minimal potential. In this case, a friend of mine was trying to have a baby with his wife; after one year they could not. After seeing a doctor, he was informed that he has Klinefelter Syndrome and is unable to produce sperm. Naturally this had a devastating affect on their relationship, but they persisted through two years of I.V.F. to no avail. It can put great strain on relationships and in this case a partner must be patient, supportive and understanding, as they will undoubtedly see both the best and worst of a Klinefelter Syndrome person.